Q: I recently received the Spring 2015 Catalog from the department store Barneys New York. The catalog was sent to my house without any envelope or sleeve to protect it from being opened by kids, even though it contains pictures that I believe are inappropriate for young children. What can be done to prevent such mailings in the future? Are there any laws that govern how such catalogs are sent?
When Dillon McCarty was 13, he received a very special gift from his stepfather Nicholas Gula—a new kidney.
But Gula, 34, didn’t donate his kidney to Dillon. Instead, he gave it to a stranger, a 29-year-old man also in need of a kidney transplant in Atlanta. And in return, the man’s wife gave her kidney to Dillon.
The carefully choreographed “operation” involved two selfless donors, two flights, two states, three hospitals and four surgeries—more than one thousand miles apart—inexplicably tying two families.
“It was a dream,” says Gula. “I was saving two lives. Words can’t even express how I felt.”
The reason for the kidney exchange was simple. To be a match, a donor’s blood type and antibody testing must be compatible with the recipient. Dillon had relatives—including his stepfather—who were willing to donate, but those donors were incompatible. Only his mother Samantha McCarty was a match, but not one that would work for Dillon.
Marijuana policy in the United States is changing rapidly, with some states (including every state in New England) legally allowing marijuana to be used for medical reasons. Washington State and Colorado recently voted to allow the recreational use of marijuana, and Massachusetts may hold a similar ballot measure in 2016. It’s no surprise, then, that many parents wonder whether marijuana might have any benefits for certain pediatric conditions, and whether it’s safe for children.
A quick Facebook search shows that a number of groups have cropped up calling for medical marijuana for conditions like autism and attention deficit hyperactivity disorder (ADHD). Some of these online groups point to studies showing that medical marijuana is helpful in these conditions. Other groups tell compelling stories about a child who was struggling with autism whose behavior was dramatically better after being treated with marijuana.
Before doctors recommend a new treatment, we always make sure that carefully conducted studies have answered two critical questions. First, does the treatment actually work? And second, is it harmful? In essence, we need to be sure that the benefits outweigh the risks.
Hemophilia has always been part of Kayla Klein’s life. Her father, David, had the condition. Her son, 6-month-old Robbie (that’s him above), has it too.
For years, though, Kayla has also surrounded herself with the right people—people who know hemophilia and who have helped her and her husband Joel create a life where the condition isn’t something that happened to them. Rather, it’s part of their family’s normal. And they’re determined to make sure that it will never keep little Robbie—or them—down.
A life embedded in hemophilia
David died when Kayla was just shy of two. But it wasn’t from his hemophilia. Rather, like so many others in the 1980s and 90s, he died because the blood products he took to keep the disease under control were contaminated with HIV.
Hemophilia remained a lurking presence in her life growing up, but started coming to the foreground when she and Joel married. Because Kayla carries the hemophilia mutation in her genes, they knew there was a 50/50 chance that if they had a son he would have the condition himself.
When the couple started asking questions about hemophilia and family planning, a colleague of Kayla’s introduced them to Lori Dobson, a genetic counselor at Brigham and Women’s Hospital.
Ultimately, after working with Dobson to understand their options, Kayla and Joel decided to just go for it.
“We realized that we could do lots of things and not have a baby with hemophilia, but could still have a baby with something else,” Kayla recalls. “We decided to just go ahead and see what happened.”