A cure for milk allergies? Part 3: Brett Nasuti takes his very first sip of milk.

by Erin Graham on September 8, 2009

Brett Nasuti is the first patient to participate in a milk desensitization study at Children’s. In this video—the third  in our Milk Allergy series—Brett takes his very first (tiny) sips of cow’s milk. Watch to see how he tolerates the allergen.

To watch last week’s video about Children’s Allergy Program’s Director, Lynda Schneider, MD, discussing the study, click here.

To see the first video, in which Brett and his mom, Robyn, talk about what it’s been like for their family to live with his life-threatening condition and their hopes for the trial’s outcome, click here.

To read Robyn’s account of what it was like when she found out about Brett’s severe allergies, read an excerpt from her diary.

Check back next week to see the Nasuti family take on their regular challenge of food shopping—no easy feat, considering that two out of the three Nasuti children have life-threatening food allergies.

We’d love to hear what you think; share your comments!

15 comments

  • Cathy DeVinney

    Wow!!! You, Brett, are brave! How exciting! I will admit to having a tear in my eye as I watch and think about what this and other studies being done could mean to food allergy families in the future. In segment 2 Dr. Schneider spoke about the use of Xolair in this study. Can you please elaborate on how this is being used? Thanks. I will wait with anticipation for the next segment!!!

  • Felicita Diaz-Rivera

    OMG!!! I was so scared watching Brett try the sip of milk.
    Brett is such an amazing kid. His level of bravery is such an immense miracle. I sense extreme love for him from his mom and I can’t even find the words to describe how moved I am by seeing this 3rd video. After watching him try that last dose of milk and seeing he was fine…I cried. Please let this be the hope for us all who have children who suffer from severe multiple food allergies…It brings hope to me, a mom with a son with severe milk allergy.

    Felicita Diaz-Rivera

  • http://www.childrenshospital.org Erin Graham

    Hi Cathy,

    I checked with one of the doctors running the Children’s study about your question. He says:

    The major problem with desensitization for food allergy is the development of severe allergic reactions to the food. We are using the Xolair to reduce or prevent allergic reactions from developing during the desensitization protocol.

    I hope that answers your question,

    Erin Graham

  • Manu

    Hi Cathy – this gives me and my wife tremendous hope for our son.

    Is this different from other desensitization therapies for non-food allergies? Like the one described here

    http://www.elajmd.com/allergy2.htm

    Thanks

  • Jennifer Pease

    I have tears streaming down my cheeks. This is amazing to watch. Thank you so much for inviting us to experience this with you. I am so hopeful for Brett. My son 7 is severely allergic to milk. Usually tests over 100 on the Rast.

    How are you planning to safely give him milk at home in-between visits?

    I can not wait for the next video.

    Jennifer

  • Pingback: spewdfree.com » Blog Archive » Milk Desensitization Study at Children’s Hospital Boston()

  • Robyn Nasuti

    Hi Jennifer,
    Brett was on Xoalir for 8 weeks before they gave him any milk. The first time was in the hospital with Drs. stadning by. Once he was able to tolerate a little over an ounce he was sent home with measured amounts to admdinister each day. All the while he was still on the xolair so his Allergies were “shut off”. Each week in the hospital they increased the amount by a tiny amount. After 16 weeks they stopped the Xolair but kept him on the milk every day like clock work at 8AM. We kept a diary and watched for any symptoms as the xoalir slowly worked its way out of his system (over the next six weeks). It was all very scary, but we knew he would be okay. We have the most amazing Dr.s workng with us.

    Two days to go.
    Robyn

  • http://Internalweb Evelyn Solis

    My son had his yearly visit with the allergist two weeks ago, he is 11 years old. She mentioned that there was a study being done for patiens with milk allergy. That made me so happy. Now, that I see this video of Brett going through the desensitization study. I have tears down my face, tears of joy. I have so much hope now, there is no words to describe my happiness. All I can think about is my son having cheese pizza, he always talks about when he gets better with his food allergies, the first thing he wants to eat is cheese pizza. Some people don’t understand what this means, but there are alot of people that actually do know what it would be like to finally have hope that one day we will all be eating at dinner and we all will be eating the same food. Thank you Children’s Hospital I am so proud to work here, the place of hope.
    Evelyn Solis

  • Tanya

    This is great– Is there hope? I would love to try to even slightly desensitize my son. A few weeks ago he ended up in E.R. with anaphylactic reaction due to a piece of gum that happened to have lactose as an ingredient. Not good. He is 15 and will be 16 in April- I fear for the kid when he goes anywhere. How do you go about becoming a part of one of these studies? Thanks for your time. Tanya

  • http://www.childrenshospital.org Erin Graham

    Hello,

    I asked Lynda Schneider, MD, the director of Children’s Allergy Program and the woman who is running Children’s study, about your question. She says:

    Yes — there is hope. However, more research is needed to determine the safest and best procedures. If you live near Boston and are interested in participating in our study, please call our study coordinator at 617-355-6127. There are several allergy research centers in other parts of the country. I would suggest asking your allergist if they know if anything is being done locally. Please take note that desensitization is not a procedure that should be done at home because there is a risk of your child having a reaction. Good luck getting your son into a trial.

    Erin Graham

  • http://allergysmart.net Aaron Dwyer

    This is what they have been doing in Italy I believe.

    You can read more about it here … http://www.allergyhope.com/

    Glad to see it being taken up in the USA. Wonder when it will make it’s way to Australia.

    Thanks
    Aaron

  • Pingback: Anaphylaxis Management Using Desensitisation – Episode #23 | Food Allergy and Anaphylaxis Information - Online TV and Podcast Blog()

  • simone

    Dear Erin,
    Have you heard of any studies like this in Los Angeles?
    Thank you so much for your time.
    Simone

  • Erin Graham

    Hi Simone — I’ll check with the doctors running our study and let you know if they know of any in your area.

    Erin

  • Rosalie Dosik

    Very interesting study. I have a 40 year old daughter who has the milk protein allergy from birth and has suffered all this time because of it. Is a person of this age able to become desensitized? Are any studies being done on adults? Also, is Brett as of today (2010) able to have milk without getting sick? Your comments will be greatly appreciated

Previous post:

Next post: