Comments on: A cure for milk allergies? Part 3: Brett Nasuti takes his very first sip of milk.

By: Rosalie Dosik

Rosalie Dosik — Fri, 04 Jun 2010 19:51:00 +0000

Very interesting study. I have a 40 year old daughter who has the milk protein allergy from birth and has suffered all this time because of it. Is a person of this age able to become desensitized? Are any studies being done on adults? Also, is Brett as of today (2010) able to have milk without getting sick? Your comments will be greatly appreciated

By: Erin Graham

Erin Graham — Tue, 27 Apr 2010 12:30:00 +0000

Hi Simone — I’ll check with the doctors running our study and let you know if they know of any in your area.

Erin

By: simone

simone — Thu, 22 Apr 2010 15:19:00 +0000

Dear Erin,
Have you heard of any studies like this in Los Angeles?
Thank you so much for your time.
Simone

By: Anaphylaxis Management Using Desensitisation – Episode #23 | Food Allergy and Anaphylaxis Information - Online TV and Podcast Blog

Wed, 07 Oct 2009 04:18:21 +0000

[...] the 3rd one with Brett having his first sip of milk – http://childrenshospitalblog.org/a-cure-for-allergies-part-3-brett-nasuti-takes-his-very-first-sip-o... The rest you can watch over at Children’s Hospital Blog, but these were the main ones I [...]

By: Aaron Dwyer

Aaron Dwyer — Wed, 07 Oct 2009 00:15:52 +0000

This is what they have been doing in Italy I believe.

You can read more about it here … http://www.allergyhope.com/

Glad to see it being taken up in the USA. Wonder when it will make it’s way to Australia.

Thanks
Aaron

By: Erin Graham

Erin Graham — Thu, 01 Oct 2009 15:48:31 +0000

Hello,

I asked Lynda Schneider, MD, the director of Children’s Allergy Program and the woman who is running Children’s study, about your question. She says:

Yes — there is hope. However, more research is needed to determine the safest and best procedures. If you live near Boston and are interested in participating in our study, please call our study coordinator at 617-355-6127. There are several allergy research centers in other parts of the country. I would suggest asking your allergist if they know if anything is being done locally. Please take note that desensitization is not a procedure that should be done at home because there is a risk of your child having a reaction. Good luck getting your son into a trial.

Erin Graham

By: Tanya

Tanya — Thu, 01 Oct 2009 13:21:33 +0000

This is great– Is there hope? I would love to try to even slightly desensitize my son. A few weeks ago he ended up in E.R. with anaphylactic reaction due to a piece of gum that happened to have lactose as an ingredient. Not good. He is 15 and will be 16 in April- I fear for the kid when he goes anywhere. How do you go about becoming a part of one of these studies? Thanks for your time. Tanya

By: Evelyn Solis

Evelyn Solis — Fri, 18 Sep 2009 17:46:56 +0000

My son had his yearly visit with the allergist two weeks ago, he is 11 years old. She mentioned that there was a study being done for patiens with milk allergy. That made me so happy. Now, that I see this video of Brett going through the desensitization study. I have tears down my face, tears of joy. I have so much hope now, there is no words to describe my happiness. All I can think about is my son having cheese pizza, he always talks about when he gets better with his food allergies, the first thing he wants to eat is cheese pizza. Some people don’t understand what this means, but there are alot of people that actually do know what it would be like to finally have hope that one day we will all be eating at dinner and we all will be eating the same food. Thank you Children’s Hospital I am so proud to work here, the place of hope.
Evelyn Solis