Comments on: A cure for milk allergies? Part 3: Brett Nasuti takes his very first sip of milk.

By: Anaphylaxis Management Using Desensitisation – Episode #23 | Food Allergy and Anaphylaxis Information - Online TV and Podcast Blog

Wed, 07 Oct 2009 04:18:21 +0000

[...] the 3rd one with Brett having his first sip of milk – http://childrenshospitalblog.org/a-cure-for-allergies-part-3-brett-nasuti-takes-his-very-first-sip-o... The rest you can watch over at Children’s Hospital Blog, but these were the main ones I [...]

By: Aaron Dwyer

Aaron Dwyer — Wed, 07 Oct 2009 00:15:52 +0000

This is what they have been doing in Italy I believe.

You can read more about it here … http://www.allergyhope.com/

Glad to see it being taken up in the USA. Wonder when it will make it’s way to Australia.

Thanks
Aaron

By: Erin Graham

Erin Graham — Thu, 01 Oct 2009 15:48:31 +0000

Hello,

I asked Lynda Schneider, MD, the director of Children’s Allergy Program and the woman who is running Children’s study, about your question. She says:

Yes — there is hope. However, more research is needed to determine the safest and best procedures. If you live near Boston and are interested in participating in our study, please call our study coordinator at 617-355-6127. There are several allergy research centers in other parts of the country. I would suggest asking your allergist if they know if anything is being done locally. Please take note that desensitization is not a procedure that should be done at home because there is a risk of your child having a reaction. Good luck getting your son into a trial.

Erin Graham

By: Tanya

Tanya — Thu, 01 Oct 2009 13:21:33 +0000

This is great– Is there hope? I would love to try to even slightly desensitize my son. A few weeks ago he ended up in E.R. with anaphylactic reaction due to a piece of gum that happened to have lactose as an ingredient. Not good. He is 15 and will be 16 in April- I fear for the kid when he goes anywhere. How do you go about becoming a part of one of these studies? Thanks for your time. Tanya

By: Evelyn Solis

Evelyn Solis — Fri, 18 Sep 2009 17:46:56 +0000

My son had his yearly visit with the allergist two weeks ago, he is 11 years old. She mentioned that there was a study being done for patiens with milk allergy. That made me so happy. Now, that I see this video of Brett going through the desensitization study. I have tears down my face, tears of joy. I have so much hope now, there is no words to describe my happiness. All I can think about is my son having cheese pizza, he always talks about when he gets better with his food allergies, the first thing he wants to eat is cheese pizza. Some people don’t understand what this means, but there are alot of people that actually do know what it would be like to finally have hope that one day we will all be eating at dinner and we all will be eating the same food. Thank you Children’s Hospital I am so proud to work here, the place of hope.
Evelyn Solis

By: Robyn Nasuti

Robyn Nasuti — Tue, 15 Sep 2009 19:08:32 +0000

Hi Jennifer,
Brett was on Xoalir for 8 weeks before they gave him any milk. The first time was in the hospital with Drs. stadning by. Once he was able to tolerate a little over an ounce he was sent home with measured amounts to admdinister each day. All the while he was still on the xolair so his Allergies were “shut off”. Each week in the hospital they increased the amount by a tiny amount. After 16 weeks they stopped the Xolair but kept him on the milk every day like clock work at 8AM. We kept a diary and watched for any symptoms as the xoalir slowly worked its way out of his system (over the next six weeks). It was all very scary, but we knew he would be okay. We have the most amazing Dr.s workng with us.

Two days to go.
Robyn

By: spewdfree.com » Blog Archive » Milk Desensitization Study at Children’s Hospital Boston

Mon, 14 Sep 2009 21:27:34 +0000

[...] Children’s Hospital Boston is conducting a milk desensitization study. They are posting videos on their site so you can follow the child who is going through the study. I think it’s pretty cool and wish I could get my Little J into a study like this. Check it out here : http://childrenshospitalblog.org/a-cure-for-allergies-part-3-brett-nasuti-takes-his-very-first-sip-o... [...]

By: Jennifer Pease

Jennifer Pease — Mon, 14 Sep 2009 16:09:46 +0000

I have tears streaming down my cheeks. This is amazing to watch. Thank you so much for inviting us to experience this with you. I am so hopeful for Brett. My son 7 is severely allergic to milk. Usually tests over 100 on the Rast.

How are you planning to safely give him milk at home in-between visits?

I can not wait for the next video.

Jennifer