Comments on: A cure for milk allergies? Mom Robyn Nasuti shares her experience.

By: Donna LaRose

Donna LaRose — Tue, 15 Sep 2009 19:07:01 +0000

I am so happy for your son!!! My son has life threatening allergies to the top 7 out of the 8 he outgrew wheat at the age of 2. He will be 10 tomorrow and I have been praying for a cure since he was 5 months old and I am hoping this will be it. Thank you so much for having your child do his trial you are helping so many people. I pray it will all go well and he will be having an ice cream party for his next birthday (o: Snicerely, Donna LaRose

By: Donna LaRose

Donna LaRose — Tue, 15 Sep 2009 19:02:39 +0000

I am so happy for your family. My son also has life threatening allergies to the top 7 out of 8 foods he outgrew wheat by the age of 2. He will be 10 tomorrow (o: I have prayed for some kind of cure and I am hoping this will be it. Good luck and thank you for doing this trial you will be helping so many people. God bless your family!!! Donna LaRose

By: sue

sue — Tue, 15 Sep 2009 18:28:33 +0000

2.5 ounces!!!! Congrats to you Brett. I hope/think I see a pizza party in your future.

Has it been hard? Let us know when you feel like telling us. We are so proud of you and happy for you and your family.

Sue

By: Susie McCurley

Susie McCurley — Sat, 12 Sep 2009 14:09:34 +0000

Hi Robyn,
I’m flipped to hear he can actually tolerate over 2 ounces! I told Liam and he is thrilled for Brett too. We are in Watertown, MA! I beleive Liam is the 2nd child here and all they keep telling us is “we have another child” who is at week ….. etc. And low and behold it’s Brett they are talking about. We have used the “numbing cream” and it does work well.
I would really love Brett to meet Liam. Our son is extremely verbal about his food allergies for a 7 year old and quite a character. He to feels like he wants to do this to help other children (hopefully his own brother) with food allergies. That’s a lot for a child to take on because as you know they have to go through a lot and not all children could do it. We’ll email Brett soon.
Peace and Health, Susie McCurley

By: Kathi

Kathi — Sat, 12 Sep 2009 13:37:30 +0000

Like others, I felt like I was reading our story…fortunately, our ped was more on the ball and sent us to an allergist the first time I tried a milk formula at 5 months. I, too, remember watching that rash creep down his body and thinking, “What the heck is *that*?” I’d had two other children and thought I’d seen everything, though I never could figure out why my third was so rashy and cried all day long. I also remember the awful guilt when I thought about all the ice cream and peanut butter I’d consumed during pregnancy and breastfeeding.

My FA DS is almost four and recently had an anaphylactic reaction to milk (he accidentally ate a bite of his sister’s cereal while we were on vacation). It was frightening and depressing, as we had hoped he was outgrowing…his numbers have always been low, but our allergist reminds us that only ingestion tells the true story. I will be following Brett’s story very closely and cheering him on in his journey!

By: Ann

Ann — Sat, 12 Sep 2009 00:22:19 +0000

Dear Robyn:

Upon reading your post, I thought we were reading about our family, also a family with 3 kids. Our middle child, now age 9, has had food allergies from the get-go and we did all the same things you did, wondering why all the trips to the derm and the ointments, etc., were not effective. She has multiples and also has been a patient of dr. schneider for more than 8 years now. But walking into children’s was truly a breath of fresh air for us. She still has multiple allergies, but reading your story gives us hope that one day she may be able to eliminate some of these allergies. Given the fact that food is so social, these kids are troopers. It is not as terrible as what some families have to experience, but it is a difficulty that most don’t understand.

Good luck to you all

By: Robyn Nasuti

Robyn Nasuti — Fri, 11 Sep 2009 12:53:00 +0000

Susie,
The numbing cream is great when left on for about 2 hours prior to the injection. Ask for a prescription and do it at home before you go to the hospital.

Brett is in maintenance and drinking 2.5 ounces of milk every day now. We go back next Thursday for his final challenge. Fingers crossed!

Are you in Boston or California?

Brett has email and some other kids have emailed him. His email is slushynasuti@charter.net.

Good Luck!

By: Susie McCurley

Susie McCurley — Fri, 11 Sep 2009 01:50:52 +0000

Hi Robyn,
My 7 year old son is also in the the same study as your son. He’s had only one xolair injection and so far so good. I too am a mom of 2 boys with fatal food allergies and live your same life! My little guy is being so brave and is very motivated to be in this trial. He is our little hero! I would love for your son Brett to meet up with my son. I know our son has lot’s of questions. Please reach out. We are very hopeful for your son and counting on it working out for him.
Peace and Health, Susie McCurley