Comments on: New guidelines for physicians: How to give a diagnosis of Down syndrome http://childrenshospitalblog.org/new-guidelines-for-physicians-how-to-give-a-diagnosis-of-down-syndrome/ Children's Hospital Boston's pediatric health blog Sun, 18 Dec 2011 15:38:12 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Disability News | PatriciaEBauer.com » News Archive » How should doctors deliver a diagnosis of Down syndrome? http://childrenshospitalblog.org/new-guidelines-for-physicians-how-to-give-a-diagnosis-of-down-syndrome/comment-page-1/#comment-377 Disability News | PatriciaEBauer.com » News Archive » How should doctors deliver a diagnosis of Down syndrome? Fri, 02 Oct 2009 19:15:05 +0000 http://childrenshospitalblog.org/?p=1584#comment-377 [...] Lead researcher Brian Skotko of Children’s Hospital Boston offers a synopsis of the recommendations. [...] [...] Lead researcher Brian Skotko of Children’s Hospital Boston offers a synopsis of the recommendations. [...]

]]> By: Lance Boldt http://childrenshospitalblog.org/new-guidelines-for-physicians-how-to-give-a-diagnosis-of-down-syndrome/comment-page-1/#comment-376 Lance Boldt Thu, 01 Oct 2009 16:13:48 +0000 http://childrenshospitalblog.org/?p=1584#comment-376 About 5 minutes after our son was born, our doctor told us that he suspected Down syndrome. He delivered the news very compassionately. However, he was unprepared to answer any of our questions, but did arrange for a specialist to come in later that day to talk with us. That was very helpful - but it was a frightening wait. We didn't leave the hospital with a single scrap of paper (this was before the internet) - it took us about a month to locate resources on our own. They did offer to have us talk with a nurse who had a son with DS - but he was in his twenties and we wanted to talk with parents with an infant or toddler - the gap between our baby and a man with Down syndrome seemed to wide to comprehend. After my first meeting with other parents of children with disabilities (about 6 months later) I saw how we were all struggling with "why". The next morning I awoke with a story in my head. Here's a link to it. It helped us and has been well received by others as well. http://tinyurl.com/secretjourney About 5 minutes after our son was born, our doctor told us that he suspected Down syndrome. He delivered the news very compassionately. However, he was unprepared to answer any of our questions, but did arrange for a specialist to come in later that day to talk with us. That was very helpful – but it was a frightening wait.

We didn’t leave the hospital with a single scrap of paper (this was before the internet) – it took us about a month to locate resources on our own. They did offer to have us talk with a nurse who had a son with DS – but he was in his twenties and we wanted to talk with parents with an infant or toddler – the gap between our baby and a man with Down syndrome seemed to wide to comprehend.

After my first meeting with other parents of children with disabilities (about 6 months later) I saw how we were all struggling with “why”. The next morning I awoke with a story in my head. Here’s a link to it. It helped us and has been well received by others as well.

http://tinyurl.com/secretjourney

]]> By: Laura http://childrenshospitalblog.org/new-guidelines-for-physicians-how-to-give-a-diagnosis-of-down-syndrome/comment-page-1/#comment-375 Laura Wed, 30 Sep 2009 18:33:36 +0000 http://childrenshospitalblog.org/?p=1584#comment-375 Hello, I am an outreach coordinator for the health video website www.icyou.com. In honor of National Down Syndrome Awareness Month in October we have uploaded many new health videos relevant to this post on your site. We have interviews and insight from various professionals, patients, organizations and others. Plenty of videos can help to answer questions and provide general information on Down Syndrome and other health-related topics. We hope to continue uploading new Down Syndrome material daily. Please feel free to share the URLs for the pieces (included below) and/or embed the videos directly onto your own website (available through URLs) – our goal is to simply spread the information as far and wide as we can. If you have any questions or comments about these videos or icyou in general, don’t hesitate to contact me. Thanks very much for your time. Regards, Laura Robbins Outreach coordinator www.icyou.com laura.robbins@benefitfocus.com icyou's Down Syndrome videos: http://www.icyou.com/topics/medical-fields/pediatrics/down-syndrome+ Hello,

I am an outreach coordinator for the health video website http://www.icyou.com.

In honor of National Down Syndrome Awareness Month in October we have uploaded many new health videos relevant to this post on your site. We have interviews and insight from various professionals, patients, organizations and others. Plenty of videos can help to answer questions and provide general information on Down Syndrome and other health-related topics. We hope to continue uploading new Down Syndrome material daily.

Please feel free to share the URLs for the pieces (included below) and/or embed the videos directly onto your own website (available through URLs) – our goal is to simply spread the information as far and wide as we can.

If you have any questions or comments about these videos or icyou in general, don’t hesitate to contact me. Thanks very much for your time.

Regards,

Laura Robbins

Outreach coordinator
http://www.icyou.com
laura.robbins@benefitfocus.com

icyou’s Down Syndrome videos:
http://www.icyou.com/topics/medical-fields/pediatrics/down-syndrome+

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