http://childrenshospitalblog.org/one-mothers-story-our-babys-pulmonary-hypertension/ Children's Hospital Boston's pediatric health blog Sun, 18 Dec 2011 15:38:12 +0000 hourly 1 http://wordpress.org/?v=3.2.1 http://childrenshospitalblog.org/one-mothers-story-our-babys-pulmonary-hypertension/comment-page-1/#comment-2152 Congenital Heart Disease « Heart Disease Around The World Tue, 30 Nov 2010 22:09:36 +0000 http://childrenshospitalblog.org/?p=828#comment-2152 [...] Riley was born on July, 6, 2007 via c-section and was 9 lbs 10 ounces.  The  doctors mentioned she had a heart murmur, but it was probably nothing the parents needed to worry about.  However, two weeks later, Riley was no longer eating and was being really fussy.  They took her into her pediatrician, but the pediatrician rushed her to the hospital.  She went through two bypass operations and three cardiac catheterizations.  On her third bypass surgery, after coming to the conclusion that she might need an artificial valve, the doctor was able to successfully make a repair without having to put in the artificial valve.  Riley healed and is now 3 and is a very active girl; however, the parents are still watching her all the time and it will be something they will be concerned about for the rest of her life. [...] [...] Riley was born on July, 6, 2007 via c-section and was 9 lbs 10 ounces.  The  doctors mentioned she had a heart murmur, but it was probably nothing the parents needed to worry about.  However, two weeks later, Riley was no longer eating and was being really fussy.  They took her into her pediatrician, but the pediatrician rushed her to the hospital.  She went through two bypass operations and three cardiac catheterizations.  On her third bypass surgery, after coming to the conclusion that she might need an artificial valve, the doctor was able to successfully make a repair without having to put in the artificial valve.  Riley healed and is now 3 and is a very active girl; however, the parents are still watching her all the time and it will be something they will be concerned about for the rest of her life. [...]

]]> http://childrenshospitalblog.org/one-mothers-story-our-babys-pulmonary-hypertension/comment-page-1/#comment-85 Roy Silveira Jr Thu, 20 Aug 2009 07:48:07 +0000 http://childrenshospitalblog.org/?p=828#comment-85 Our daughter was born with the most severe heart defect known to birth called HLHS and has spent over 230 days in the cardiac intensive care unit since birth. she has had 5 open heart surgeries 6 catheterizations, 3 emergency surgeries on other parts of her body and she is still in the hospital thriving like you wouldnt believe. our daughter is 10 months now and has spent all but 2 months of her life in the hospital. we have a long story to share and alot of bumps in the road to go along with it. Also to think mom and I are young parents me being 24 and mom being 19. My how our parents have watched us grow up fast! Children's should do a story on us and we should be on the front page! Our daughter was born with the most severe heart defect known to birth called HLHS and has spent over 230 days in the cardiac intensive care unit since birth. she has had 5 open heart surgeries 6 catheterizations, 3 emergency surgeries on other parts of her body and she is still in the hospital thriving like you wouldnt believe. our daughter is 10 months now and has spent all but 2 months of her life in the hospital. we have a long story to share and alot of bumps in the road to go along with it. Also to think mom and I are young parents me being 24 and mom being 19. My how our parents have watched us grow up fast! Children’s should do a story on us and we should be on the front page!

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