One patient's story: Why a rare disfiguring disease won’t stop me

by Erin Graham on October 12, 2009

ariana_250Arianna Faro struggled for years with the challenges of living with Klippel-Trenaunay (KT) syndrome, but has come to accept the role it plays in her life. Here, she shares her story.

Also, you can watch a video of Arianna talking about Klippel-Trenaunay.

Have thoughts or feedback? Please share them with us.


6 comments

  • Sudha

    Thank you for bringing us the story of this gutsy young woman! more power to you, Arianna!

  • http://www.facebook.com/ChildrensHospitalBoston?ref=search&sid=100000131990636.2537082010..1 Children’s Hospital Boston Facebook

    *Comments taken from Children’s Facebook fan page*

    Joanie Figueroa
    What an inspiring story

    Carol Rita Sylvia
    Thank you, Arianna, for sharing your story! Stay well!

  • Pingback: Arianna Faro: A rare disfiguring disease won’t stop me | OrangeBall.CH - The Frog Blog

  • http://www.chromesdiseasez.com chromes disease

    Good for her! I love when people have something that is “wrong” with them or makes them different and they learn to deal with it and turn it into something positive. I try to think the same. I mean, there’s always someone worse off than you.. so why be upset about life. Living is what is most important.

  • http://www.chromesdiseasez.com chromes disease

    Good for her! I love when people have something that is “wrong” with them or makes them different and they learn to deal with it and turn it into something positive. I try to think the same. I mean, there’s always someone worse off than you.. so why be upset about life. Living is what is most important.

  • childrenshospitalblog

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