One patient's story: Why a rare disfiguring disease won’t stop me

by Erin Graham on October 12, 2009

ariana_250Arianna Faro struggled for years with the challenges of living with Klippel-Trenaunay (KT) syndrome, but has come to accept the role it plays in her life. Here, she shares her story.

Also, you can watch a video of Arianna talking about Klippel-Trenaunay.

Have thoughts or feedback? Please share them with us.


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Arianna Faro: A rare disfiguring disease won’t stop me | OrangeBall.CH - The Frog Blog
April 9, 2010 at 8:03 am

{ 4 comments… read them below or add one }

Sudha October 19, 2009 at 11:06 pm

Thank you for bringing us the story of this gutsy young woman! more power to you, Arianna!

Children's Hospital Boston Facebook October 22, 2009 at 3:08 pm

*Comments taken from Children’s Facebook fan page*

Joanie Figueroa
What an inspiring story

Carol Rita Sylvia
Thank you, Arianna, for sharing your story! Stay well!

chromes disease April 17, 2010 at 4:55 am

Good for her! I love when people have something that is “wrong” with them or makes them different and they learn to deal with it and turn it into something positive. I try to think the same. I mean, there’s always someone worse off than you.. so why be upset about life. Living is what is most important.

childrenshospitalblog April 17, 2010 at 4:56 am

Thanks for your message. I will be out of the office April 13-15 and working remotely on Friday, April 16. During this time, I will have limited e-mail access. If you need to reach me immediately, please re-send your message with high importance (and it will be forwarded to my mobile) or reach me via cell phone at 617-600-8686. Otherwise, I will return your message at my first opportunity. Thank you.

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