Comments on: One patient's story: Why a rare disfiguring disease won’t stop me http://childrenshospitalblog.org/one-patients-story-why-a-rare-disfiguring-disease-won%e2%80%99t-stop-me/ Children's Hospital Boston's pediatric health blog Sun, 18 Dec 2011 15:38:12 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: childrenshospitalblog http://childrenshospitalblog.org/one-patients-story-why-a-rare-disfiguring-disease-won%e2%80%99t-stop-me/comment-page-1/#comment-469 childrenshospitalblog Sat, 17 Apr 2010 09:56:03 +0000 http://childrenshospitalblog.org/?p=1948#comment-469 Thanks for your message. I will be out of the office April 13-15 and working remotely on Friday, April 16. During this time, I will have limited e-mail access. If you need to reach me immediately, please re-send your message with high importance (and it will be forwarded to my mobile) or reach me via cell phone at 617-600-8686. Otherwise, I will return your message at my first opportunity. Thank you. Thanks for your message. I will be out of the office April 13-15 and working remotely on Friday, April 16. During this time, I will have limited e-mail access. If you need to reach me immediately, please re-send your message with high importance (and it will be forwarded to my mobile) or reach me via cell phone at 617-600-8686. Otherwise, I will return your message at my first opportunity. Thank you.

]]> By: chromes disease http://childrenshospitalblog.org/one-patients-story-why-a-rare-disfiguring-disease-won%e2%80%99t-stop-me/comment-page-1/#comment-468 chromes disease Sat, 17 Apr 2010 09:55:45 +0000 http://childrenshospitalblog.org/?p=1948#comment-468 Good for her! I love when people have something that is “wrong” with them or makes them different and they learn to deal with it and turn it into something positive. I try to think the same. I mean, there’s always someone worse off than you.. so why be upset about life. Living is what is most important. Good for her! I love when people have something that is “wrong” with them or makes them different and they learn to deal with it and turn it into something positive. I try to think the same. I mean, there’s always someone worse off than you.. so why be upset about life. Living is what is most important.

]]> By: chromes disease http://childrenshospitalblog.org/one-patients-story-why-a-rare-disfiguring-disease-won%e2%80%99t-stop-me/comment-page-1/#comment-1254 chromes disease Sat, 17 Apr 2010 08:55:00 +0000 http://childrenshospitalblog.org/?p=1948#comment-1254 Good for her! I love when people have something that is “wrong” with them or makes them different and they learn to deal with it and turn it into something positive. I try to think the same. I mean, there’s always someone worse off than you.. so why be upset about life. Living is what is most important. Good for her! I love when people have something that is “wrong” with them or makes them different and they learn to deal with it and turn it into something positive. I try to think the same. I mean, there’s always someone worse off than you.. so why be upset about life. Living is what is most important.

]]> By: Arianna Faro: A rare disfiguring disease won’t stop me | OrangeBall.CH - The Frog Blog http://childrenshospitalblog.org/one-patients-story-why-a-rare-disfiguring-disease-won%e2%80%99t-stop-me/comment-page-1/#comment-467 Arianna Faro: A rare disfiguring disease won’t stop me | OrangeBall.CH - The Frog Blog Fri, 09 Apr 2010 12:03:01 +0000 http://childrenshospitalblog.org/?p=1948#comment-467 [...] Children’s Hospital Boston Newsletter and blog. Children’s Hospital Boston website Tagged with: [...] [...] Children’s Hospital Boston Newsletter and blog. Children’s Hospital Boston website Tagged with: [...]

]]> By: Children's Hospital Boston Facebook http://childrenshospitalblog.org/one-patients-story-why-a-rare-disfiguring-disease-won%e2%80%99t-stop-me/comment-page-1/#comment-466 Children's Hospital Boston Facebook Thu, 22 Oct 2009 19:08:21 +0000 http://childrenshospitalblog.org/?p=1948#comment-466 *Comments taken from <a href="http://www.facebook.com/ChildrensHospitalBoston?ref=search&sid=100000131990636.2537082010..1" rel="nofollow">Children's Facebook fan page</a>* Joanie Figueroa What an inspiring story Carol Rita Sylvia Thank you, Arianna, for sharing your story! Stay well! *Comments taken from Children’s Facebook fan page*

Joanie Figueroa
What an inspiring story

Carol Rita Sylvia
Thank you, Arianna, for sharing your story! Stay well!

]]> By: Sudha http://childrenshospitalblog.org/one-patients-story-why-a-rare-disfiguring-disease-won%e2%80%99t-stop-me/comment-page-1/#comment-465 Sudha Tue, 20 Oct 2009 03:06:29 +0000 http://childrenshospitalblog.org/?p=1948#comment-465 Thank you for bringing us the story of this gutsy young woman! more power to you, Arianna! Thank you for bringing us the story of this gutsy young woman! more power to you, Arianna!

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