Our patients’ stories: Lucas redefines the term “half-hearted”

The next time you’re tempted to refer to a lazy co-worker’s efforts as “half-hearted,” take a second to rethink that statement. In popular culture half-hearted may mean unmotivated, but around the McGowan house it means brave, strong and amazing.

Bill and Becky McGowan were just about five months into their first pregnancy when tests reveled that there was a problem with the baby’s heart. The doctors explained their unborn child had hypoplastic left heart syndrome (HLHS), one of the most devastating congenital heart defects, in which the left ventricle is severely underdeveloped.

They were stunned and scared, but also determined to give their child the best shot at life, half a heart and all. They quickly began researching treatment centers for HLHS, and were routinely directed to Boston Children’s Hospital’s Heart Center, the No. 1 ranked pediatric cardiac care team in the country, according to US News and World Report.

You can see a recent news story on Lucas here.

Lucas the lion-hearted

To treat HLHS, Boston Children’s cardiac surgeons often perform three palliative procedures. Lucas was operated on by Christopher Baird, MD, director of Boston Children’s Congenital Heart Valve Program, and like 95 percent of the children treated for HLHS, he survived the first procedure. A few months later he survived his second, and will have his third surgery in the future.

Join us in wishing Lucas luck in his third surgery, and congratulating him on completely redefining what it means to be “half-hearted.”

For more information on how Boston Children’s treats hypoplastic left heart syndrome, as well as other pediatric heart issues, please Contact Our Team or Request an Appointment.

Love Lucas’s story? Want to read more about tiny heart heroes? Please visit these blogs:

Connected by little hearts: When Jeffrey Cameron was born in 1996 he seemed to be a perfectly healthy baby. Then, at just ten days old, he was diagnosed with HLHS. Not only did Jeffrey overcome, his mother started a parent driven HLHS community that’s still thriving today. Read their story.

 

Saving Parker: When Casey Bolton learned her unborn baby had a HLHS she had never even heard of the condition, never mind understand its complicated treatment. Now, inspired by the care she and her baby received at Boston Children’s, the young mom works tirelessly to raise awareness on HLHS and its treatment so other mother’s won’t have to go through the fear and confusion she did. Read her story.

 

The other side of the bed. Cheryl Toole had been a nurse at Children’s Neonatal Intensive Care Unit (NICU) for over a decade when her day-old daughter had to undergo heart surgery. Here, she shares her experience as patient mother instead of care provider.

  • christina grames

    i know the feeling my son izaiah was also born with half heart it was very scarey we didnt know untill i was 7 months preg. izaiah is now 3 …he had his first surgery at 4 days old then at 3 months and we just had his last 3 rd surgery may 2012..surgery went well but few days later he had a mild stroke. lost feeling to his left side we were told izaiah wouldnt walk untill he went to kindergarden or at all. few days later in the hospital he wanted to.go.for a walk we said no but gave in to him.. izaiah was walking. nurses could not beleave it.they all came running to see him crying taking pictures of him ..it was a merical … izaiah is now fine has all feeling agane but is still doing therophy.. im wishing u the best of luck.cause i was in your shoes its a long hard road but u will.get thrue it and at the end its all worth it cause u did what was right choise u have your baby boy…