Posts tagged as:

clinicl trial food allergy

Robyn Nasuti shares her tips on keeping her kitchen safe–no small feat, given that two out of her three children have severe food allergies. She also shows how she’s simplified home-made pizza night at her house.

Other videos and posts in the series

In last week’s video, we followed Brett Nasuti at school, where he runs Allergy Awareness Week to raise money for research. Brett is Children’s first patient to go through a new trial that could cure him of his severe food allergies. Hear what he and his classmates have to say.

Celebrity chef Ming Tsai, chef-owner of Blue Ginger restaurant in Wellesley, Massachusetts, is passionate about improving restaurant systems so people with food allergies can eat out safely. The father of a son who has had multiple severe food allergies, Tsai talks about what he’s learned as both a chef and a parent here. [click to continue…]

Comments

Brett_oneyearMy name is Robyn Nasuti and I’m the mother of three children: Brett, 11, (who’s featured in this series and pictured here), Taylor Marie, 10, and Nicholas, 5. Brett is allergic to dairy, peanuts and eggs. Taylor has no food allergies and Nicholas is allergic to peanuts, dairy, eggs, lamb, chicken, turkey, sesame, almond, wheat, oat, spelt, banana, pea and walnut. He just outgrew his soy allergy last month.

My husband, Alan, and I found out about Brett’s allergies when he was 1. I started keeping a journal because every time I went to the doctor, they’d ask me questions about his skin, asthma and  reactions, and I couldn’t keep it straight in my head. By writing down my thoughts, I was able to find peace — and also helped doctor’s determine how to best deal with Brett’s allergies.

Here’s an excerpt from my journal.

[click to continue…]

Comments