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complex congenital heart defect

This week on Thrive: June 7-11

by Childrens Hospital Boston staff on June 13, 2010

Here’s what Thrive was talking about this week.

Child athletes who get back on the field right after suffering a concussion are placing themselves at great risk. One of our experts helped word a bill before Massachusetts lawmakers that would make concussion safety a bigger concern for public school sports teams.

The Wall Street Journal featured an article on Children’s Hospital Boston’s Gene Partnership Project (GPP), a new program in which all patients entering Children’s will eventually be able to take part in genetic research—as active partners.

Scott Leibowitz, MD, of Children’s Hospital Boston’s department of psychiatry, blogged about a soon-to-be launched gender and sexuality psychosocial pilot program he has coordinated at Children’s, which will be the first of its kind in the United States.

Casey Bolton, the mom of a Children’s patient, blogged the about her Children’s experience with her son, Parker, born with a complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS).

Just because your child suffers from asthma doesn’t mean he or she can’t enjoy running, swimming and other outdoor play made possible by the long, bright days of summer! Check out the Healthy Family Fun website, a project of Children’s Hospital Boston and Kohl’s Department Stores, for info on this subject and more!

Children’s pediatrician Claire McCarthy wrote a blog on how parenting can feel like a competitive sport.

Did you know kids can suffer a stroke? Though rare, it’s not just an adult medical condition. Hear from Michael Rivkin, MD, director of the Cerebrovascular Disorders and Stroke program at Children’s Hospital Boston, who talks about childhood stroke and its treatment.

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One patient’s story: my baby’s congenital heart defect

by Childrens Hospital Boston staff on June 9, 2010

By Casey Bolton

During a routine ultrasound I had in the 20th week of my pregnancy, I learned that my soon-to-be-born son, Parker, would be born with a complex congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS).

Parker medical smile

Parker a few weeks after leaving Children's

Because of the severity of Parker’s condition, our doctors recommended an induced birth in Boston so he could be immediately rushed to Children’s Hospital Boston’s Cardiac Intensive Care Unit (CICU).

Parker’s first 24 hours of life were so unstable that doctors weren’t sure he’d make it. His condition was so severe that even as his parents we weren’t allowed to see him in the cardiac ICU until they could stabilize him with an emergency catheterization.

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