Posts tagged as:

food allergy desensitization

Boston Globe Magazine: Raising kids with allergies

by Kristin Cantu on December 14, 2009

Jennifer LeBovidge, PhD, a psychologist from Children’s Allergy and Immunology Program, was quoted this weekend in a Boston Globe Magazine article about the challenges of parenting a child with significant food allergies.

Although only about 4 percent of Americans are affected by food allergies, they seem more prevalent today than ever. We recently finished an eight-part milk allergy series where we followed Brett Nasuti, a Children’s patient who last summer became the first person ever to go through a milk exposure desensitization trial. Check out the first video in the series.

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Other stories we’ve been reading:

teen brainPsychologist wins $1 million for showing that teen brains really are different. Researchers are able to show that remedial reading classes for weak readers really can change young brains. A history of juvenile delinquency is linked to early death in men.

If your children have cavities, it’s much more likely they’ll become adults with cavities. An Israeli study found that premature babies listening to Mozart were able to grow faster. Children born to mothers exposed to microbes during pregnancy may be less likely to develop allergies.

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This week on Thrive: Oct. 12 – 16

by Childrens Hospital Boston staff on October 18, 2009

Here’s a quick look at what Thrive was up to last week.

Arianna Faro shares her story of how she’s struggled with the rare, disfiguring disease Klippel-Trenaunay (KT) syndrome, but has come to accept the role it plays in her life. A new study has reignited worries about BPA exposure being hazardous to our children. We find out in the last part of our milk allergy series if Brett Nasuti has been cured, and his mom, Robyn, tell us how the result affects her family. Parents tell us why they’ve chosen to give their children the H1N1 vaccine. The HealthMap team gives us a weekly update on the latest H1N1 news. We’re keeping up with Children’s Hospital Boston’s heart team in Ghana. Children’s resident Mediatrician helps a dad figure out how his son can balance school work and social media. A Children’s study  aims to catch dyslexia before it catches your child.

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This week on Thrive: Oct. 5 – 9

by Childrens Hospital Boston staff on October 11, 2009

Here’s a quick look at what Thrive was up to last week.

Canada is delaying its seasonal-flu vaccine program. Should we be worried? There are an alarmingly high number of glass-table injuries involving children. Six months after Children’s Hospital Boston’s Division of Emergency Medicine published a study on these injuries, new standards have been recommended in the production of glass-tables. A Children’s study showed that side effects or accidental overdoses of medications in children are more common than you might think. In part 7 of our milk allergy series, Robyn Nasuti shares her tips on keeping her kitchen safe. French Parliament wants to pass a law that would mandate a bold print notice when images have been digitally enhanced. Children’s Alison Field, ScD, who specializes in eating disorders, talks about what we can do to educate our children about images in the media. We follow one family’s story when they discovered their child, Ann Louise, showed signs of a congenital heart defect. Children’s David Ludwig, MD, addresses the soda-tax solution in an opinion piece for the Los Angeles Times. The HealthMap team gives their weekly H1N1 update. The Mediatrician weighs in on what computer games, if any, are good for a 2-year-old.

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Robyn Nasuti shares her tips on keeping her kitchen safe–no small feat, given that two out of her three children have severe food allergies. She also shows how she’s simplified home-made pizza night at her house.

Other videos and posts in the series

In last week’s video, we followed Brett Nasuti at school, where he runs Allergy Awareness Week to raise money for research. Brett is Children’s first patient to go through a new trial that could cure him of his severe food allergies. Hear what he and his classmates have to say.

Celebrity chef Ming Tsai, chef-owner of Blue Ginger restaurant in Wellesley, Massachusetts, is passionate about improving restaurant systems so people with food allergies can eat out safely. The father of a son who has had multiple severe food allergies, Tsai talks about what he’s learned as both a chef and a parent here. [click to continue…]

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Brett Nasuti has battled bullies who have taunted him with put-downs like “peanut boy” and had to sit at the highly stigmatized ‘peanut-free table” at school. Even so, he could be the poster child for living well with food allergies. He’s even taken it upon himself to educate his peers by organizing an annual Food Allergy awareness week at his school, during which he raises money for food allergy research. Here, watch Brett in action and hear what his schoolmates have to say about what they’ve learned from him. [click to continue…]

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This week, watch the Nasutis take on their regular challenge of food shopping—no easy feat, considering that two out of the three children have life-threatening food allergies. Brett was born allergic to 15 foods, and his little brother, Nicholas, is allergic to 16. Their sister, Taylor, doesn’t have any food allergies, like her parents. In order to keep them all fed, Robyn makes three different meals every time her family eats, which requires her to drive to three different grocery stores. And the specialty foods don’t come cheap; dairy-free milk alone costs her $10 a gallon. “I spend about $850 a month on groceries,” Robyn says.

[click to continue…]

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Brett_oneyearMy name is Robyn Nasuti and I’m the mother of three children: Brett, 11, (who’s featured in this series and pictured here), Taylor Marie, 10, and Nicholas, 5. Brett is allergic to dairy, peanuts and eggs. Taylor has no food allergies and Nicholas is allergic to peanuts, dairy, eggs, lamb, chicken, turkey, sesame, almond, wheat, oat, spelt, banana, pea and walnut. He just outgrew his soy allergy last month.

My husband, Alan, and I found out about Brett’s allergies when he was 1. I started keeping a journal because every time I went to the doctor, they’d ask me questions about his skin, asthma and  reactions, and I couldn’t keep it straight in my head. By writing down my thoughts, I was able to find peace — and also helped doctor’s determine how to best deal with Brett’s allergies.

Here’s an excerpt from my journal.

[click to continue…]

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