This story was written by Sarah Doyle, mother of Aidan.
I’m sure that I’m one of many parents who credit Children’s Hospital Boston with having saved their child’s life. But I don’t think many parents have had an experience quite like ours. Aidan was born in April of 2007, with a giant omphalocele, a defect in which the abdominal organs develop within the umbilical cord, outside of the abdomen. This only occurs in an estimated 1 in 2,500 pregnancies. The defect was detected during a routine ultrasound at 20 weeks gestation. It’s pretty hard news to take when you are told your unborn child has a life threatening defect, and that the defect may be associated to chromosomal abnormalities or that other anomalies may be present. We thought ourselves lucky; the omphalocele appeared to be isolated, and his chances of survival seemed pretty good. Full story »
Riley arrived on July 6, 2007, via c-section at a hefty 9 pounds and 10 ounces. She was gorgeous, plump and hairy. The doctors mentioned she had a heart murmur, but probably nothing we needed to worry about.
