Comments on: What overcoming a milk allergy means to my family http://childrenshospitalblog.org/what-overcoming-a-milk-allergy-means-to-my-family/ Boston Children's Hospital's pediatric health blog Sun, 18 Dec 2011 15:38:12 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Hadassah Sweet http://childrenshospitalblog.org/what-overcoming-a-milk-allergy-means-to-my-family/comment-page-1/#comment-1626 Hadassah Sweet Tue, 14 Sep 2010 17:00:00 +0000 http://childrenshospitalblog.org/?p=2007#comment-1626 This sounds like me! It really stinks to have allergies like this. I can get sick from something as simple as using a knife previously used to cut something with cheese. And my allergies do not just cause discomfort - they mess with my breathing, throat (swells), and then I'm out of it for hours. The effects last for days so it's not a laughing matter. I would love to know how to live life to the fullest again without having to worry each time I eat. This sounds like me! It really stinks to have allergies like this. I can get sick from something as simple as using a knife previously used to cut something with cheese. And my allergies do not just cause discomfort – they mess with my breathing, throat (swells), and then I’m out of it for hours. The effects last for days so it’s not a laughing matter.

I would love to know how to live life to the fullest again without having to worry each time I eat.

]]> By: Maureen http://childrenshospitalblog.org/what-overcoming-a-milk-allergy-means-to-my-family/comment-page-1/#comment-489 Maureen Thu, 22 Oct 2009 01:38:07 +0000 http://childrenshospitalblog.org/?p=2007#comment-489 This is what I have been searching for, for 11 years now. My daughter Kayla 12 is allergic to diary, nuts, fish and shellfish (beef can give her a bad stomach ache). When I heard Brett say that he would do anything to outgrow his milk allergy, it broke my heart; because Kayla has said that many many many times. Brett, congrats to you and for being sooo brave on such an uncertain journey. Robyn, I would love to somehow contact you and speak w/ you regarding this research. I called Childrens and spoke w/ Lisa regarding Bretts study but, the laws she won't allow her to provide w/ much information. I'm curious what Bretts IGE levels were and past reactions to milk. I'm sure you are being inundated w/ requests, however, if you should find the time to talk or email Brett's story I would be very grateful. My life's mission is to somehow help Kayla before she really starts to venture out on her own (scarey thought). I cried happiness for Brett and your family b/c I live the allergy everyday as well. I don't really know anyone else w/ the severe dairy allergy. My niece 13 outgrew her milk allergy, so I have hope for Kayla at somepoint. It's just hard to believe that Xoliar actually cured Brett from having any reactions, amazing. In the meantime be well and congratulations. This is what I have been searching for, for 11 years now. My daughter Kayla 12 is allergic to diary, nuts, fish and shellfish (beef can give her a bad stomach ache). When I heard Brett say that he would do anything to outgrow his milk allergy, it broke my heart; because Kayla has said that many many many times. Brett, congrats to you and for being sooo brave on such an uncertain journey. Robyn, I would love to somehow contact you and speak w/ you regarding this research. I called Childrens and spoke w/ Lisa regarding Bretts study but, the laws she won’t allow her to provide w/ much information. I’m curious what Bretts IGE levels were and past reactions to milk. I’m sure you are being inundated w/ requests, however, if you should find the time to talk or email Brett’s story I would be very grateful. My life’s mission is to somehow help Kayla before she really starts to venture out on her own (scarey thought). I cried happiness for Brett and your family b/c I live the allergy everyday as well. I don’t really know anyone else w/ the severe dairy allergy. My niece 13 outgrew her milk allergy, so I have hope for Kayla at somepoint. It’s just hard to believe that Xoliar actually cured Brett from having any reactions, amazing. In the meantime be well and congratulations.

]]> By: Sue http://childrenshospitalblog.org/what-overcoming-a-milk-allergy-means-to-my-family/comment-page-1/#comment-488 Sue Wed, 14 Oct 2009 23:28:19 +0000 http://childrenshospitalblog.org/?p=2007#comment-488 This gives me chills. What a way to put it into words. Thank you Robyn for sharing Brett's story. My daughter (5 years old) will start a baked milk study in 2 weeks. Following Brett's story has given me more confidence as our first challenge day gets closer. This gives me chills. What a way to put it into words. Thank you Robyn for sharing Brett’s story. My daughter (5 years old) will start a baked milk study in 2 weeks. Following Brett’s story has given me more confidence as our first challenge day gets closer.

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